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Although I was diagnosed with Parkinson's disease four years ago, the condition was present long before this diagnosis. I initially did not recognise the symptoms. It was my sister who first pointed out, "You are not walking properly." I dismissed her concerns until I noticed a shaking in my hand. This prompted me to visit my GP, who then referred me to a neurologist, leading to a direct diagnosis.
Another individual shared their experience: "I was first diagnosed seven and a half years ago, but I should have consulted a doctor five or six years prior. I avoided it because I didn't want to face the reality."
Explaining Parkinson's disease to others can be challenging. While some people are familiar with the condition, many are not. It is often necessary to clarify how Parkinson's affects individuals differently. For instance, I used to hide my symptoms from friends by sitting with my hands between my legs to conceal my shaking. When I eventually disclosed my condition, they were sceptical. Even now, some people struggle to believe that I have Parkinson's disease.
In public spaces, such as supermarkets, I occasionally face impatience from others. For example, if I struggle to get my money out at the checkout, I often hear frustrated comments from those behind me.
The severity of Parkinson's symptoms can fluctuate throughout the day. I take medication four times daily to manage these symptoms. Mornings are particularly difficult until I take my first tablet, and sometimes it takes until my lunchtime medication for me to feel more stable.
Fatigue can be so overwhelming that I sometimes fall asleep even while standing. These symptoms contribute to a sense of general tiredness and slowness, making daily tasks more challenging.
