This video is normally available to paying customers.
You may unlock this video for FREE. Enter your email address for instant access AND to receive ongoing updates and special discounts related to this topic.
Nocturnal epilepsy involves tonic-clonic seizures, which are often characterised by unconscious body jerking, tongue biting, and other intense symptoms. These seizures occur during sleep, but not exclusively at night.
For those with nocturnal epilepsy, it is crucial to monitor the severity of seizures. If seizures become severe, immediate action, such as timing the seizures and potentially calling an ambulance, may be necessary. Despite having managed this for years, witnessing a seizure can remain frightening and challenging.
On a day-to-day basis, managing nocturnal epilepsy often involves avoiding triggers such as exhaustion and elevated temperatures. For instance, infections or high temperatures can provoke severe seizures, necessitating close monitoring and medical intervention, including the use of medications like paracetamol.
Carers may face significant emotional and physical challenges. When seizures occur, carers must ensure the safety of the individual, sometimes dealing with injuries caused by convulsions or the distress of having emergency services involved.
During a seizure, the arrival of paramedics can be unsettling for both the individual and their family. The chaotic experience of having strangers in the home, coupled with the individual’s confusion and resistance to medical equipment, adds to the stress.
Effective communication is crucial. It is important for emergency services and medical professionals to use appropriate language when discussing seizures. Terms like "fit" can be minimising; "seizure" is a more accurate and respectful term. Additionally, proper training and understanding of the condition can significantly impact the quality of care provided.
Initially, navigating life with epilepsy can be daunting due to a lack of clear guidance and support. The early stages often involve receiving minimal information and relying on self-education and support groups to manage the condition.
Despite the difficulties, seeking out support from organisations and community groups can be invaluable. Joining support groups and connecting with others who understand the condition can provide both practical advice and emotional support. Sharing experiences and learning from others can greatly alleviate the sense of isolation and confusion that often accompanies a new diagnosis.
Nocturnal epilepsy presents unique challenges for both those affected and their carers. Increased awareness, appropriate medical response, and support from community resources are essential for managing the condition effectively and improving quality of life.
