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It took several years from the onset of Multiple Sclerosis (MS) symptoms to receive a definitive diagnosis. My diagnosis came in August 2014 after feeling unwell for months. Initially, I suspected food poisoning and was referred to hospital by my doctor. I was urgently admitted due to a complete shutdown of my body functions. After five days in the emergency ward, the doctors suspected MS and conducted necessary tests, confirming the diagnosis.
My initial symptoms included numbness in my toes and a dragging sensation in my other leg, which appeared gradually and resolved over time. These symptoms recurred approximately once a year. When diagnosed, my wife and I were taken aback, knowing little about MS beyond media coverage. The diagnosis was a significant shock, though I was somewhat familiar with MS because my mother had it. The impact on me was relatively mild initially, allowing me to continue with life as usual.
MS can cause a variety of symptoms, including nausea, incontinence, fatigue, and more. A common symptom is slurred speech, which can be mistaken for intoxication. The MS Society even has a T-shirt reading, "I am not drunk, I have MS," highlighting this issue. Although the condition has become more challenging over time, with secondary progressive MS affecting my left side, walking, vision, and increasing fatigue, my wife remains a crucial support system. She helps me manage daily activities and ensures I take breaks when needed.
Initially, I did not inform my children about my MS, which was a mistake. They eventually knew, and I realised that children can handle such information better than expected. Friends have been supportive, though sometimes overly cautious. For instance, a friend suggested using a wheelchair for a zoo visit shortly after my diagnosis, which was premature but well-meaning.
Joining a local MS support group can be daunting but beneficial. It helps to see others with similar conditions and understand that MS affects everyone differently. Participating in forums or groups can provide valuable perspectives and support. I initially found the term "My MS" peculiar but realised it reflects the unique nature of each person's experience with the condition.
When I decided to retire from teaching, I joined the local MS Society and became actively involved. This involvement has been fulfilling and provided a sense of purpose. Engaging with the MS community and being involved in advocacy can be rewarding and help maintain a positive outlook on managing the condition.
